Posts

Showing posts from August, 2023

Giving Your Medically Complex Child the Best Quality of Life

Image
  As a parent of a child with a complex medical condition, it can be challenging to navigate the various treatments and therapies that are necessary for their care. It can be easy to get caught up in the medical aspects of their condition and to forget about the importance of their overall quality of life. However, it is important to remember that giving your child the best quality of life possible is crucial for their physical and emotional well-being. Here are some tips for giving your medically complex child the best quality of life: 1. Focus on their strengths and abilities: It is important to focus on your child's strengths and abilities, rather than their limitations. This can help them feel confident and capable, and can also help you as a parent to see the positive aspects of their condition. 2. Encourage independence: Encourage your child to be as independent as possible, within their abilities. This can help them feel a sense of control and accomplishment, and can also he

The Power of Sharing Your Story

Image
  Sharing your story can be a powerful way to connect with others and help those in need. When we open up about our experiences, we allow others to see that they are not alone in their struggles and that it is possible to overcome challenges and find hope. For me, it was important to keep friends and family updated on Dot's medical condition and journey. That turned into making friends and joining support groups where I not only could share my knowledge and experience with others, but have a place to seek advice and help also. One of the main reasons it is important to share your story is that it can inspire and motivate others. By sharing your journey, you can show others that they too can overcome their own struggles and achieve their goals. Your story can provide a sense of hope and encouragement, which can be especially helpful for those who may be going through a difficult time. Another reason to share your story is that it can raise awareness about important issues. By sharin