April In The Burbs

I have gone without hot water before. I have lived without heat during bitter winters on occasion. I have seen my daughter fight for her life for the first 3 months of her life in NICU. But this season of my life is clearly the hardest.  Having kids is definitely no easy feat. No matter how many you have. Having two simultaneously sick kids, while being sick yourself is definitely harder in my book.  With Dorothy having had pulmonary hypertension at birth, and also having Panhypopit, sickness in our house is something we can't afford to mess around with. We have no sickness wiggle room with her. We are currently on a very strict schedule of every 3 hour Albuteral nebulizer treatments, every 6 hour Pulmicort neb treatments, every 12 hour oral steroids, once a day antibiotic, 3 times a day oral Musinex, twice a day Flonase, and then her regular three times daily meds for her panhypopit. Whew! That's a lot of meds for such a tiny baby!  Add to ALL of that, Johnny is also on ...

We've been very fortunate so far as far as Dorothy's insurance covering everything, including her medications, food for her first-tube, and Medical Supplies. Unfortunately, due to her extensive stay in the NICU, she left at the hospital with plagiocephaly otherwise known as flat head syndrome. We've done everything we can do at home for her as far as repositioning her and keeping her off of the left side of her head, but nothing seems to be working. We are now proceeding with getting her a DOC band, which will slowly help fix her flat head syndrome and round out her head. Unfortunately the DOC band and medical expenses for that come to around $4000, and her health insurance will cover zero of the cost.  This is GoFundMe.com comes in. We have started a campaign to receive donations to help us pay for her treatment. We realize that not everyone will be able to donate, so we just ask that you please share her link on your social media and pass the word, as unfortunately at th...