April In The Burbs

I was definitely on the verge of caretaker burnout when Dot was newly home from the hospital. If you're so burnt-out that you're not even taking anywhere near proper care of yourself, it's time to try a new way.  Caretaker burnout is a common and serious issue faced by individuals who are responsible for the care of others, whether it be for a family member, a friend, or a client. It is important to address caretaker burnout as it can have serious consequences on both the physical and mental health of the caretaker as well as the quality of care they are able to provide. Here are some tips for avoiding caretaker burnout: Take breaks: It is important to take breaks from caregiving duties to allow yourself time to rest and recharge. This could be as simple as taking a few minutes to sit down and relax or taking a day off to do something enjoyable. Seek support: Don't try to do everything on your own. It is important to have a support system in place, whether it be friends...

As a family, it's easy to get caught up in the hustle and bustle of daily life. Between work, school, and managing a chronically ill child's medical needs, it can feel like there's never enough time in the day. However, it's crucial to take time for fun and levity in life, especially when dealing with the challenges of chronic illness. That's why attending the Sherwood Forest Faire as a family was such a meaningful experience for us. The Sherwood Forest Faire is an annual Renaissance festival held in the heart of Texas. It's a magical experience where you can step back in time and immerse yourself in the world of knights, jesters, and maidens. The festival offers a variety of activities for all ages, from jousting tournaments and archery competitions to live music and performances. As a family with a chronically ill child, attending the Sherwood Forest Faire was a chance to let loose and have fun without worrying about medical appointments or treatments. We wer...

  Homeschooling a child with a rare disease can be a challenging, but rewarding, experience. For many families, homeschooling is the best option because it allows them to tailor their child's education to their specific needs and challenges. However, homeschooling can also make it difficult for children with rare diseases to have social interactions with their peers. One of the main benefits of homeschooling is the ability to provide a customized education that meets a child's unique needs. For children with rare diseases, this can be especially important because they may have unique challenges or limitations that can make it difficult for them to attend a traditional school. Homeschooling allows families to take a more flexible approach to education and can make it easier for children with rare diseases to keep up with their studies. However, homeschooling can also make it more difficult for children with rare diseases to have social interactions with their peers. Traditional ...