tag:blogger.com,1999:blog-657634924053478732024-03-19T20:10:01.404-05:00April In The Burbs🦋 Parent Advocate
🌈 Co-Parenting Covid Homeschooler
Unknownnoreply@blogger.comBlogger537125tag:blogger.com,1999:blog-65763492405347873.post-23088855467799798532024-03-12T20:05:00.005-05:002024-03-12T20:05:00.130-05:00Crafting a Successful Online Store: Next, Finding Profitable Products<p style="text-align: left;"></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtQnV881BM_z9s-ShBcLA3Q2eQVVxw0FxVEwTHlx8j2ft0Qw-lhbWZQSoptZx5OQK_bpgkurBjw7tYXPzlH9QBJtoLPO2srt-R-uOXtrcb_q7j1Y_dq3Oa9fvg_XslbirWWe1Yok2NooWYOBHlex1dQOFkyIpQaOI-CBCAmq0gKeIPTIM_BQLLJBMN0_w/s3024/IMG_3054.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtQnV881BM_z9s-ShBcLA3Q2eQVVxw0FxVEwTHlx8j2ft0Qw-lhbWZQSoptZx5OQK_bpgkurBjw7tYXPzlH9QBJtoLPO2srt-R-uOXtrcb_q7j1Y_dq3Oa9fvg_XslbirWWe1Yok2NooWYOBHlex1dQOFkyIpQaOI-CBCAmq0gKeIPTIM_BQLLJBMN0_w/s320/IMG_3054.HEIC" width="320" /></a></div><br /><div class="separator" style="clear: both; text-align: center;"><br /></div><p></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">1. </strong><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Choose the Right Platform</strong>: Opt for a user-friendly platform like Shopify, eBay, or Etsy that suits your products. I find that typically Etsy has the exact same vintage items (even more rare ones), are listed for roughly double the amount the same item is listed on eBay. This is my own personal experience from doing research on items for my own shop. </p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><br /></p><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">2. Build a Consistent Brand</strong>: Create a cohesive brand image with a consistent color scheme, logo, and product presentation. I prefer to keep the same background color on all of my photos, which I feel helps me keep a clean and consistent brand image for my personal shop.<div><br /><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">3. Optimize Listings</strong>: Craft compelling product descriptions, use high-quality images, and incorporate relevant keywords for better search visibility. Photos are probably one of my most important tools for selling items. Make sure your photos are bright, clean, and clear with no clutter in the background. Be sure to get photos of, and note any damage or issues with the item. This is very important information for your customers. People don't mind buying a vintage item that shows wear with age, but they want to be made known that the wear is there and photos along with the description goes a long way in helping with that. </div><div><br /><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">4. User-Friendly Design</strong>: Ensure easy navigation and a simple checkout process to enhance the overall customer experience. This speaks for itself. With most websites that you'll be selling on, this will be a one time setup, which can be adjusted as your needs change. </div><div><br /><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">5. Go Mobile-Friendly</strong>: Cater to mobile users with a responsive design, ensuring your online store looks great and functions well on various devices. I typically keep things like this blog on mobile view for easy use and navigation for users. </div><div><br /><span style="caret-color: rgb(209, 213, 219); font-size: 16px; white-space-collapse: preserve;"><b>Next Month - Month 3: "Find Stuff to Sell"</b></span><br /><span style="caret-color: rgb(209, 213, 219); font-size: 16px; white-space-collapse: preserve;">Explore sourcing options like thrifting, wholesale, and dropshipping to fill your online store with unique and profitable products. Stay tuned for expert insights on building a diverse inventory that captivates your audience.</span><br /><br /></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-32593069722183664422024-02-09T19:51:00.004-06:002024-02-09T19:51:00.141-06:00Smart Start for Reselling Success<p style="text-align: left;"><span style="font-family: arial;"> </span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFsCUiIHEHeQG7v-U-4q3vsnPc1x56Cb8p_c15lX1IJswGIHLTTiywfjyMt63MGyYadOPOabAQHepAEkXDr8IJTY-XsoYhrPuIqlmPGTgayylQoG9CGOrq1CopHryTi7HlsSKwuJdS-nIE99dPZeeEENizETwLSteWGv8owTNp7X4pq31GX72K6bKW0nk/s3024/IMG_2521.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3024" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFsCUiIHEHeQG7v-U-4q3vsnPc1x56Cb8p_c15lX1IJswGIHLTTiywfjyMt63MGyYadOPOabAQHepAEkXDr8IJTY-XsoYhrPuIqlmPGTgayylQoG9CGOrq1CopHryTi7HlsSKwuJdS-nIE99dPZeeEENizETwLSteWGv8owTNp7X4pq31GX72K6bKW0nk/s320/IMG_2521.jpeg" width="320" /></a></span></div><span style="font-family: arial;"><br /></span><p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px; text-align: left; white-space: pre-wrap;"><span style="font-family: arial;">Embarking on your reselling journey? Let's keep it simple with these steps to set you on the path to success.</span></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px; white-space: pre-wrap;"></p><div style="text-align: left;"><span style="font-family: arial;">Step 1: Research the Markets</span></div><span style="font-family: arial;"><div style="text-align: left;">Delve into market trends using online platforms and industry reports to understand what's in demand.</div></span><p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px; white-space: pre-wrap;"></p><div style="text-align: left;"><span style="font-family: arial;">Step 2: Choose Your Niche</span></div><span style="font-family: arial;"><div style="text-align: left;">Identify your passion and expertise. Mine happens to be vintage. Specializing in a niche builds trust with customers and sets you apart.</div></span><p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px; white-space: pre-wrap;"></p><div style="text-align: left;"><span style="font-family: arial;">Step 3: Know Your Products</span></div><span style="font-family: arial;"><div style="text-align: left;">Become an expert in your chosen niche. Understand the value, history, and market demand for your products.</div></span><p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px; white-space: pre-wrap;"></p><div style="text-align: left;"><span style="font-family: arial;">Step 4: Stay Informed and Adapt</span></div><span style="font-family: arial;"><div style="text-align: left;">Keep up with market trends and be adaptable. Embrace change based on feedback and shifts in the market.</div></span><p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 1.25em 0px 0px; white-space: pre-wrap;"></p><div style="text-align: left;"><span style="font-family: arial;">Next Month: "Online Store Basics"</span></div><span style="font-family: arial;"><div style="text-align: left;">Stay tuned for our next installment, where we'll dive into the essentials of creating an online store. Learn how to pick the right platform to showcase your treasures and make your mark in the reselling world. Happy selling!</div></span><p></p><p><br /></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-79037403793237189722024-02-04T21:51:00.003-06:002024-02-04T21:51:15.358-06:00Vintage Treasure Hunt: 5 Mistakes That Can Cost You<p style="text-align: left;"><span style="font-family: inherit;"> Just popping in to lay a little beginner advice down for y’all! Here are, as far as I can tell, the 5 biggest mistakes that people make when buying vintage to resell. </span></p><p></p><div class="separator" style="clear: both; text-align: left;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8AiOyo6-QpiFk6QhbGxLpkY9RRL-CfgWaztYh9XZ_7WMzUjQtcljrbjwfmhUMDxWXisQSqrXPCsjnUZEvsL_TQHlp1hnTELQWVBlIL6RFPFBKJbPVVsQi5GhO_uD9gv0YOpnc5FTB-74jWY6frqN4fXl-WotovuCgk_CGb-cetDAJ-0Z2fiT_xosry-Y/s4032/IMG_4775.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><span style="font-family: inherit;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8AiOyo6-QpiFk6QhbGxLpkY9RRL-CfgWaztYh9XZ_7WMzUjQtcljrbjwfmhUMDxWXisQSqrXPCsjnUZEvsL_TQHlp1hnTELQWVBlIL6RFPFBKJbPVVsQi5GhO_uD9gv0YOpnc5FTB-74jWY6frqN4fXl-WotovuCgk_CGb-cetDAJ-0Z2fiT_xosry-Y/s320/IMG_4775.HEIC" width="240" /></span></a></div><div style="text-align: left;"><span style="font-family: inherit;"><br /></span></div><div style="text-align: left;"><span style="font-family: inherit;"><br /></span></div><p></p><ol style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-reset: list-number 0; display: flex; flex-direction: column; list-style: none; margin: 0px; padding: 0px; text-align: left;"><li style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-increment: list-number 1; display: block; margin-bottom: 0px; margin-top: 0px; min-height: 28px; padding-left: 1.25rem;"><ol style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); counter-reset: list-number 0; display: flex; flex-direction: column; font-size: 16px; list-style: none; margin: 0px; padding: 0px; white-space: pre-wrap;"><li style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-increment: list-number 1; display: block; margin-bottom: 0px; margin-top: 0px; min-height: 28px; padding-left: 1.25rem;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><span style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">1. <b>Skippin' the Homework</b>:</span> Don't be lazy – research the heck out of that vintage piece. Know what's real, how rare it is, and what it's really worth before throwing your cash around.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><br /></span></p></li><li style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-increment: list-number 1; display: block; margin-bottom: 0px; margin-top: 0px; min-height: 28px; padding-left: 1.25rem;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><span style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">2. <b>Condition Matters, Dude</b>:</span> Don't be fooled by a shiny exterior. If that vintage find is beat up, you're in for a world of disappointment. Buyers want quality, not junk.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><br /></span></p></li><li style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-increment: list-number 1; display: block; margin-bottom: 0px; margin-top: 0px; min-height: 28px; padding-left: 1.25rem;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><span style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">3. <b>No Impulse Moves</b>:</span> Cool your jets, pal. Impulse buys or sales usually end up biting you in the rear. Take a minute to think before you dive into a deal.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><br /></span></p></li><li style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; counter-increment: list-number 1; display: block; margin-bottom: 0px; margin-top: 0px; min-height: 28px; padding-left: 1.25rem;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="font-family: inherit;"><span style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">4. <b>Provenance is King</b>:</span> If you're not checking the backstory, you're playin' with fire. Make sure that vintage piece has a legit history – it can make or break the deal.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; font-family: inherit;"><br /></span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; text-align: left;"><span style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; font-family: inherit;">5. <b>Ride the Trends</b>:</span><span style="font-family: inherit;"> Stay in the loop, my friend. Vintage markets change faster than the weather. Don't get stuck with stuff that's gone out of style like last year's bad haircut.</span></p></li></ol></li><li><p style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 0px; text-align: left; white-space: pre-wrap;"><span style="font-family: inherit;"><br /></span></p><div style="text-align: left;"><span style="font-family: inherit;">In the thrilling world of vintage reselling, avoiding common mistakes is key to unlocking success. By steering clear of these pitfalls, you're poised to transform your passion into profitable ventures. Remember, knowledge is your best asset – stay informed, adapt, and turn each setback into a stepping stone on your journey to becoming a savvy vintage reseller. Happy hunting! </span></div><p style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 0px; white-space: pre-wrap;"><span style="font-family: arial;"><br /></span></p><p style="border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 0px; white-space: pre-wrap;"><span style="font-family: arial;"></span></p></li></ol>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-9062554822648952052024-01-28T19:33:00.006-06:002024-01-28T19:33:00.151-06:00Thrifting to Reselling Riches: Unveiling the Journey<p style="text-align: center;"><br /></p><p><span style="font-family: arial;"><span style="caret-color: rgb(209, 213, 219);"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhML52LJc4Qez80aT6jJqFIRaEsY7LfxC3O_plVRuMpt4x11cvqZb7m3L-K-Nu-NN2yAwc0PZb-o9psm9HN74tApZwLI3D5Xg2_esFweNFPf2WJz1NMhcquS7kN0pGKo5KoZTb5Zjt_iUJUEf1271FxE70mNYT8HEzo_MY33atD2SgmHPE9pGwAZrfbJgk/s4032/IMG_1924.jpeg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhML52LJc4Qez80aT6jJqFIRaEsY7LfxC3O_plVRuMpt4x11cvqZb7m3L-K-Nu-NN2yAwc0PZb-o9psm9HN74tApZwLI3D5Xg2_esFweNFPf2WJz1NMhcquS7kN0pGKo5KoZTb5Zjt_iUJUEf1271FxE70mNYT8HEzo_MY33atD2SgmHPE9pGwAZrfbJgk/w240-h320/IMG_1924.jpeg" width="240" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Purchased for pennies, sold for $15.30 + shipping. </td></tr></tbody></table></span></span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial;"><br /></span></div><span style="font-family: arial;"><div style="text-align: center;">As many of you know<span style="font-family: arial;"><span style="caret-color: rgb(209, 213, 219);">, I am an enthusiast of thrifting and vintage treasures.</span></span></div></span><p></p><p style="text-align: center;"><span style="font-family: arial;"><span style="caret-color: rgb(209, 213, 219);"> As we embark on a new year, I'm excited to share my passion for the unique and the timeless.</span></span></p><p style="text-align: center;"><span style="font-family: arial;"><span style="caret-color: rgb(209, 213, 219);">Thrifting has been more than a hobby for me; it's a journey through eras, styles, and hidden gems waiting to be discovered.</span></span></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 1.25em 0px; text-align: center; white-space: pre-wrap;"><span style="font-family: arial;">In this coming year, I've decided to channel my love for thrifting into a platform where I can not only showcase my finds, but also offer insights and assistance to fellow seekers of the extraordinary. </span></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 1.25em 0px; text-align: center; white-space: pre-wrap;"><span style="font-family: arial;">From the charm of bygone eras to the thrill of the hunt in today's secondhand markets, I'll be sharing stories, tips, and tricks on navigating the world of reselling.</span></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-size: 16px; margin: 1.25em 0px 0px; text-align: center; white-space: pre-wrap;"><span style="font-family: arial;">So, join me on this adventure as we delve into the art of turning vintage treasures into a thriving business. Here's to a year of vintage wonders and reselling revelations! 🥳</span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-18848222946971360532024-01-02T12:12:00.006-06:002024-01-02T12:12:00.153-06:00Quick Tips for Job Change: Making a Comeback<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie35IyoGZZnjJqljBAkJXarAG_bxzlfkSXa5QyVRvo04ake192Mp9A1PyiBxC-EvmiAltxkBqFpAwo8wIDrFr67f02MsZb_JM0N2AKxiXytIAqBeWrCXeKr5LU-z0aCyb3DfoWPVuUbCk9P217Ai6S7bKqn8q1FJZTy4wlbduEz-wLsDdlQpQAdvXNDD0/s3088/IMG_1104.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="3088" data-original-width="2316" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie35IyoGZZnjJqljBAkJXarAG_bxzlfkSXa5QyVRvo04ake192Mp9A1PyiBxC-EvmiAltxkBqFpAwo8wIDrFr67f02MsZb_JM0N2AKxiXytIAqBeWrCXeKr5LU-z0aCyb3DfoWPVuUbCk9P217Ai6S7bKqn8q1FJZTy4wlbduEz-wLsDdlQpQAdvXNDD0/s320/IMG_1104.HEIC" width="240" /></a></div><p style="text-align: left;"><br /></p><p style="text-align: left;"> Hey there, job-seeking buddy!</p><p>If you're anything like me, you might be considering a change, thinking about returning to work outside the home or perhaps even starting your own venture. No worries! You absolutely possess transferable skills and knowledge, which is fantastic! Let's harness that potential and find a job you genuinely enjoy, allowing you to make the most of those wonderful skills.</p><p>I'm here to share some friendly advice that'll make this journey a breeze. Whether you're updating that resume or gearing up for interviews, consider me your cheerleader in this exciting job-seeking adventure. Let's dive in and make that comeback shine! 🌟</p><p><br /></p><p>1. Spruce Up Your Resume to Shine:</p><p>Make your resume pop by focusing on the cool stuff you've done. Highlight achievements, and throw in some numbers if you can. A killer resume is like your golden ticket to grab attention!</p><p style="text-align: left;"><br />2. Expand Your Friend Circle—Professionally:</p><p style="text-align: left;">Join the party online and offline! Hang out where your industry pals chill—Facebook groups, LinkedIn, you name it. Your next job might just be a chat away with a friend of a friend.</p><p style="text-align: left;"><br /></p><p>3. Nail Those Interviews with Style:</p><p>Imagine you're chatting over coffee. Practice talking about your experiences, and be ready to spill the beans on why you're awesome. It's all about being yourself, but with a sprinkle of interview magic.</p><p><br /></p><p>4. Stay in the Know, but Keep it Chill:</p><p>Show some love to what's hot in your industry. Check out the latest buzz, but keep it relaxed. Knowing your stuff will make you look like the pro you already are.</p><p><br /></p><p>5. Learn a Few New Tricks for the Job:</p><p>Think of it like adding some cool dance moves to your repertoire. Identify what skills are trendy, and hit up some online courses. It's like upgrading to the latest version of "You: The Professional Edition." 🚀</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-51627311526242741922024-01-02T07:25:00.000-06:002024-01-02T07:25:08.059-06:00DIY Delights: Adventures with Our Fancy Mouse<p><span style="font-family: arial;"></span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-family: arial;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0oKil6gQqqcnx_PRKxcZeAMjrkQe19_X70TXOOl-Xy4ZO_DUveVteDT3DOE4suFlhikl3UzrXXxluPuHfuDkrnAuXuT4H3zks9ZDuUmPq0hyphenhyphen3xFokSNJFLIVY57XEwVTyuEM9-VhF1Dl0H0xDIqmbpOkwgBwC49lvElK-YABlSMbI93y8EaaYBpSNXVA/s4032/IMG_2712.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0oKil6gQqqcnx_PRKxcZeAMjrkQe19_X70TXOOl-Xy4ZO_DUveVteDT3DOE4suFlhikl3UzrXXxluPuHfuDkrnAuXuT4H3zks9ZDuUmPq0hyphenhyphen3xFokSNJFLIVY57XEwVTyuEM9-VhF1Dl0H0xDIqmbpOkwgBwC49lvElK-YABlSMbI93y8EaaYBpSNXVA/s320/IMG_2712.jpeg" width="240" /></a></span></div><span style="font-family: arial;"><span style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); white-space: pre-wrap;"><br /></span></span><p></p><p><span style="font-family: arial;"><span style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); white-space: pre-wrap;">Max, the pint-sized member who has transformed our family dynamics in unexpected ways. As we dove into the world of fancy mice, crafting intricate hides, food puzzles, and climbing structures, we discovered the joy these little creatures can bring. In this blog post, we share our experience and offer advice on keeping a fancy mouse like Max.</span></span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">1. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Understanding Fancy Mice as Pets</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">While some may raise an eyebrow at the idea of a mouse as a pet, our journey with Max has been nothing short of delightful. Fancy mice, known for their distinctive fur patterns and friendly demeanor, make wonderful companions. Dot, in particular, found a special connection with Max, but his charm quickly captivated the entire family.</span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">2. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Creating a Mouse Haven: The 55-Gallon Tank</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">Max's home is not your average mouse habitat. With the help of our dedicated family, we set up a spacious 55-gallon tank for him. Fancy mice thrive in environments that allow for exploration and play. Consider providing climbing structures, tunnels, and hides to keep them active and engaged.</span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">3. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">DIY Delights: Crafting Hides and Food Puzzles</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">One of the most rewarding aspects of having Max in our lives is the creativity he has sparked. Dot and I enjoy crafting unique hides and challenging food puzzles for him. This not only stimulates Max mentally but also brings a sense of accomplishment to our family.</span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">4. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Family Involvement in Pet Care</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">Despite being Dot's pet, Max has become a communal responsibility. John, ever the team player, enthusiastically jumped in to help organize Max's living space. Involving the whole family in the care of your fancy mouse fosters a sense of togetherness and shared joy.</span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">5. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Building Bonds with Your Fancy Mouse</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">Fancy mice, though small, have big personalities. Spend quality time interacting with your mouse to build trust and strengthen the bond. Allow them to explore outside their enclosure under supervision and offer treats as a positive reinforcement.</span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">6. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">Health and Wellness</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px 0px 1.25em; white-space: pre-wrap;"><span style="font-family: arial;">Regularly monitor your fancy mouse's health. Keep an eye on their diet, ensure access to fresh water, and schedule vet check-ups. Mice are social animals, so consider having at least two if possible, to prevent loneliness. Males tend to be territorial and typically do better solo, but a group of female mice usually enjoy the company and time together </span></p><h3 style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; line-height: 1.6; margin: 1rem 0px 0.5rem; white-space: pre-wrap;"><span style="font-family: arial; font-size: small;">7. <strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">A Mouse-Sized Love Story</strong></span></h3><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); margin: 0px; white-space: pre-wrap;"><span style="font-family: arial;">In the midst of crafting hides and organizing a 55-gallon mouse haven, we discovered the immense joy that Max, our fancy mouse, brought into our lives. Dot's pet became a family member, and in the process, we learned that sometimes the smallest creatures can leave the biggest paw prints on our hearts. Embrace the tiny charm of fancy mice, and you may find yourself with a delightful addition to your family, just like Max.</span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-25841916251752971072023-12-22T11:46:00.002-06:002023-12-22T11:46:57.126-06:00Nana's Legacy: Embracing Change<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOVQHm2Lin4i77-1w_OQLvcAH_0mPQMCf8mXlpVkf32AF9nQSQQtS0qXvYqtTQqbSR5QelLVO3pGbF96yMvAkZsgv_aPz8vUu6x6mDukW-pSeAEEatTD4smE-CLjL0TuXzkGml_TaFHsfiI3jmbmO2EJJ1wEA3fp_bD820FSu-2GYfLVKEbH5_W36UxdM/s4032/IMG_1125.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOVQHm2Lin4i77-1w_OQLvcAH_0mPQMCf8mXlpVkf32AF9nQSQQtS0qXvYqtTQqbSR5QelLVO3pGbF96yMvAkZsgv_aPz8vUu6x6mDukW-pSeAEEatTD4smE-CLjL0TuXzkGml_TaFHsfiI3jmbmO2EJJ1wEA3fp_bD820FSu-2GYfLVKEbH5_W36UxdM/s320/IMG_1125.HEIC" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p>Wednesday was a mix of emotions as Nana moved out, making room for John and Dot to have their own spaces. The air was filled with the bittersweet scent of change, but there was a comforting warmth in knowing that time was carrying us forward, weaving a tapestry of new experiences. As the walls echoed with the excitement of rearranging rooms, there was a bigger sweetness in the air—the sweetness of growth, of moving forward, and of embracing the beautiful chaos of change.</p><p>It wasn't easy to bid farewell to the familiar, but seeing everyone adapt and flourish in the face of change filled my heart with pride. John and Dot stepped into their own rooms, tangible signs of their evolving personalities and newfound independence. The house looked different, but the love that bound us remained constant.</p><p>Here's to the past, to the sweetness of growth, and to the beautiful tapestry of change that made our family story uniquely ours. 💖</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-82798110283968896842023-12-20T17:52:00.005-06:002023-12-20T17:52:00.141-06:00 A Parent's Guide to Nurturing Your Child's New Fancy Mouse Friend<p><br /></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcqJmZZYIGEW45ELIppMa-XnBJcqc422YVC7TF1JwIe0qXr89m9W4QGyAn4hW0HePTrQCCUSJMBVgu1fc6msc5yfjnNdYOtoG9XCNFyoiE2et_4I3xrGzDxHyAgXM3krpCJjxt50Tlq-N3zKYMw6RhjhtL8WK53dcnRiPPlKZyKfzOIx7_aeoomLUkpeo/s4032/IMG_0049.jpeg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcqJmZZYIGEW45ELIppMa-XnBJcqc422YVC7TF1JwIe0qXr89m9W4QGyAn4hW0HePTrQCCUSJMBVgu1fc6msc5yfjnNdYOtoG9XCNFyoiE2et_4I3xrGzDxHyAgXM3krpCJjxt50Tlq-N3zKYMw6RhjhtL8WK53dcnRiPPlKZyKfzOIx7_aeoomLUkpeo/s320/IMG_0049.jpeg" width="240" /></a></div><br />
Welcome to the enchanting world of fancy mice, where tiny paws and inquisitive whiskers become a cherished part of your family. As a parent, ensuring the happiness and well-being of your child's new pet is a heartwarming journey. Let's explore the top 5 tips for creating a loving home for their adorable fancy mouse companion.<p></p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">1. Home Sweet Home:</strong>
Just like we choose a cozy home for our family, select a spacious cage with horizontal bars and soft bedding to make your child's mouse feel secure and comfortable.</p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">2. Wholesome Meals:</strong>
Teach your child the importance of providing a balanced diet for their furry friend. High-quality mouse food, fresh fruits, and veggies will keep their mouse feeling happy and loved.</p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">3. Playtime Adventures:</strong>
Encourage your child to spend quality time with their mouse, emphasizing the need for companionship. Introduce playful toys and activities to keep their tiny friend entertained and feeling loved.</p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">4. Cleanliness Habits:</strong>
Teach responsibility by emphasizing the importance of a clean living space. Regularly cleaning the cage and monitoring their mouse's hygiene will instill good habits in your child.</p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><strong style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(69,89,164,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box;">5. Health and Happiness:</strong>
As a parent, be the guardian of your child's mouse friend's well-being. Watch for any changes in behavior, and schedule visits to the "mouse doctor" for regular health checkups.</p><p style="-webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">Bringing a fancy mouse into your family is a delightful adventure for both you and your child. By following these tips, you'll create a nurturing environment, fostering a strong bond between your child and their pint-sized, whiskered companion. Here's to many years of joy and companionship with their new little friend!</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-85560100378539061592023-12-11T17:00:00.003-06:002023-12-11T17:01:27.816-06:00Welcoming Max: A New Addition to Our Family Just in Time for Christmas!<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhScywDFdtAsa0GtTxAuZYEXeeD9AlaKjWDO8vftQrpdO10LKzxDNS1BBnjss8cIHQOZcvO9mkw_ltcE1TpHPLIa5gU5_DhOl_v7JaWvhfWDjhv7E8tbHling3eskFL-lw-EWP210FUSKLYuJldgMNrXeDAqeqaS_IGtNIakA8Hz4sGovyRVrKFGKCku-I/s4032/IMG_0048.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhScywDFdtAsa0GtTxAuZYEXeeD9AlaKjWDO8vftQrpdO10LKzxDNS1BBnjss8cIHQOZcvO9mkw_ltcE1TpHPLIa5gU5_DhOl_v7JaWvhfWDjhv7E8tbHling3eskFL-lw-EWP210FUSKLYuJldgMNrXeDAqeqaS_IGtNIakA8Hz4sGovyRVrKFGKCku-I/s320/IMG_0048.jpeg" width="240" /></a></div><p></p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">We are thrilled to introduce the newest member of our family, Max – a fancy mouse with a heart as big as his tiny paws! As we gear up for the festive season, we couldn't be more excited to have Max join us for his first Christmas celebration.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">Max's arrival wasn't a spur-of-the-moment decision. Dot took on the challenge of proving her commitment to pet care over the past few months. She demonstrated her dedication, making sure that Max would find a loving and responsible home with us.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">Dot's efforts truly paid off, and Max has seamlessly become a part of our family. His charming antics and playful nature have brought a new level of joy and warmth to our home. From his curious exploration of his new habitat to the way he scurries about with endless energy, Max has quickly found his place in our hearts.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">Preparing for Max's first Christmas has been an exciting adventure. We've adorned his enclosure with tiny decorations, creating a cozy and festive space for him to enjoy the holiday spirit. Watching him interact with the festive additions has been a delight, and we can't wait to share the joy of the season with our new furry friend.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">As we approach Christmas day, our anticipation grows for the special moments we'll share with Max. From unwrapping tiny mouse-friendly presents to sharing a piece of holiday treat, every moment promises to be filled with warmth and laughter.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">In welcoming Max, we not only celebrate the addition of a charming little creature to our family but also the responsibility and care that Dot has demonstrated. Max's presence has added a new dimension to our lives, making this Christmas season all the more magical.</p><p data-originalcomputedfontsize="16" data-removefontsize="true" style="-webkit-tap-highlight-color: rgba(255, 255, 255, 0.25); -webkit-text-size-adjust: auto; border-color: rgb(49, 49, 49); caret-color: rgb(212, 212, 213); color: #313131; font-family: -apple-system, "Helvetica Neue"; font-size: 1rem; word-spacing: 1px;">Here's to a festive season filled with love, joy, and the pitter-patter of tiny mouse feet – welcome home, Max! 🐭</p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-64779240620424475872023-11-09T16:05:00.029-06:002023-11-09T16:05:00.142-06:00Panhypopituitarism and Adrenal Insufficiency: A Closer Look<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0RF8PURdJ89LOXI_p9I2Tjkc9YZgjN6ForJcjIEnqnkoXiYdLxfHrBbEX3QJYsOjcJPTQcyN9ES4wg6ZFCbbA3fvjT4OfgTlTH1kaV7Ei_Ff82ITpkVU2VjmQaA1_992r4vwp_fmTmUhmo6XFF3Povkmcob1xlkd6_VAtyWaDpBClWkvePUVA4Rpm/s4032/IMG_6547.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0RF8PURdJ89LOXI_p9I2Tjkc9YZgjN6ForJcjIEnqnkoXiYdLxfHrBbEX3QJYsOjcJPTQcyN9ES4wg6ZFCbbA3fvjT4OfgTlTH1kaV7Ei_Ff82ITpkVU2VjmQaA1_992r4vwp_fmTmUhmo6XFF3Povkmcob1xlkd6_VAtyWaDpBClWkvePUVA4Rpm/s320/IMG_6547.HEIC" width="240" /></a></div><br /><p></p><p><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Panhypopituitarism is a rare and serious condition in which the pituitary gland, a small gland located at the base of the brain, does not produce sufficient hormones. The pituitary gland is responsible for producing several hormones that regulate various functions in the body, including growth, metabolism, and reproductive function.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">One of the hormones produced by the pituitary gland is adrenocorticotropic hormone (ACTH), which stimulates the production of cortisol by the adrenal glands. Cortisol is a hormone that helps the body respond to stress and regulates various body functions, including metabolism and immune function.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">When the pituitary gland does not produce sufficient ACTH, it can lead to adrenal insufficiency, a condition in which the adrenal glands do not produce enough cortisol. This can cause a wide range of symptoms, including fatigue, weakness, weight loss, low blood pressure, and skin changes.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">There are several causes of panhypopituitarism and adrenal insufficiency, including:</p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Trauma: Head injuries, brain surgery, or other traumatic events can damage the pituitary gland and lead to panhypopituitarism.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Tumors: Pituitary tumors or other growths in the brain can also cause panhypopituitarism by pressing on or damaging the gland.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Infections: Certain infections, such as meningitis or tuberculosis, can also damage the pituitary gland and lead to panhypopituitarism.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Genetic factors: Panhypopituitarism can also be caused by genetic factors, such as inherited conditions that affect the pituitary gland.</p></li></ol><div><span face="Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji" style="color: #374151;"><span style="white-space: pre-wrap;">For Dot, this was something she was born with without her family any type of trauma, tumors, or genetically. For her, it was just a roll of the dice and she happened to be born with a rare, life-threatening disease.</span></span></div><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">Treatment of panhypopituitarism and adrenal insufficiency typically involves hormone replacement therapy to replace the missing hormones and restore normal hormone levels in the body. It is important to diagnose and properly treat panhypopituitarism, as the condition can lead to death if left untreated.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">In conclusion, panhypopituitarism is a rare and serious condition in which the pituitary gland does not produce sufficient hormones, and can lead to adrenal insufficiency. Causes of panhypopituitarism include trauma, tumors, infections, and genetic factors. Treatment typically involves hormone replacement therapy to restore normal hormone levels in the body.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="color: #374151; font-family: "Times New Roman";">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="color: #374151; font-family: "Times New Roman";">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-40285657399391187732023-10-18T14:20:00.042-05:002023-10-18T14:20:00.151-05:00The Differences Between Adrenal Insufficiency and Addison's Disease<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOBkxRgV46rhI1RUO0LWNxR7pv4_9JxA1zInd1XyfuSDwE6qbQ5fHhwLKTC48nVfVRm5S0SgX12QBupdmb4d2rMz9PKs-okhXLEH3rJYxzy2-VgOqhGSay4Y1dKBlyXNKdJYM7gXuErMDoAf11foi-IhL89RzSPScR6hMVqRIkvRIf8OKW9qJ7PmnI/s4032/IMG_7330.HEIC" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOBkxRgV46rhI1RUO0LWNxR7pv4_9JxA1zInd1XyfuSDwE6qbQ5fHhwLKTC48nVfVRm5S0SgX12QBupdmb4d2rMz9PKs-okhXLEH3rJYxzy2-VgOqhGSay4Y1dKBlyXNKdJYM7gXuErMDoAf11foi-IhL89RzSPScR6hMVqRIkvRIf8OKW9qJ7PmnI/s320/IMG_7330.HEIC" width="240" /></a></div><p></p><p><span><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; white-space: pre-wrap;">Dot living with a rare disease like Primary Adrenal Insufficiency will be a lifelong journey for her. That being said, the more she and we know as her parents, the better we can help her understand what's going on with her body and help her to advocate for herself when the time inevitably comes. </span></span></p><p><span><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; white-space: pre-wrap;">Dorothy was born with Panhypopituarism, meaning that her Pituitary gland</span></span><span style="background-color: #f7f7f8;"><span style="color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji;"><span style="white-space: pre-wrap;"> produces no hormones. Dot takes hydrocortisone to replace the cortisol her body doesn't make. She takes Synthroid because her thyroid doesn't work, growth hormone because she produces none, as well as having an emergency injection in case of bodily injury and illness. She will one day also be estrogen when the time comes. </span></span></span></p><p><span style="background-color: #f7f7f8;"><span style="color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji;"><span style="white-space: pre-wrap;">Although similar, </span></span></span><span style="color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji;"><span style="white-space: pre-wrap;">Adrenal Insufficiency and Addison's Disease are different, so here's some important information to keep in mind:</span></span></p><p><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">Adrenal insufficiency and Addison's disease are both conditions that involve a deficiency of the hormones produced by the adrenal gland. However, there are some key differences between the two conditions:</span></p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Cause: Adrenal insufficiency can be caused by a variety of factors, including autoimmune diseases, infections, and medications that affect the adrenal gland. Addison's disease, on the other hand, is specifically caused by damage to the adrenal gland itself, which can be due to autoimmune disorders, infections, or other conditions.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Severity: Adrenal insufficiency can range from mild to severe, depending on the cause and the extent of hormone deficiency. Addison's disease is a more severe form of adrenal insufficiency that involves complete failure of the adrenal gland.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Symptoms: The symptoms of adrenal insufficiency and Addison's disease may be similar, but they can vary depending on the severity of the hormone deficiency. Common symptoms include fatigue, weakness, weight loss, low blood pressure, and skin changes. However, individuals with Addison's disease may also experience more severe symptoms such as abdominal pain, nausea, vomiting, and dizziness.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Treatment: The treatment for adrenal insufficiency and Addison's disease involves hormone replacement therapy to restore normal levels of adrenal hormones. This may be done through medication or through injections of adrenocorticotropic hormone (ACTH). In some cases, treatment may also involve addressing the underlying cause of the hormone deficiency.</p></li></ol><div><span style="color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji;"><span style="white-space: pre-wrap;"><br /></span></span></div><div><span style="color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, Segoe UI, Roboto, Ubuntu, Cantarell, Noto Sans, sans-serif, Helvetica Neue, Arial, Apple Color Emoji, Segoe UI Emoji, Segoe UI Symbol, Noto Color Emoji;"><span style="white-space: pre-wrap;"><br /></span></span></div><div><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">. </span></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-11950709369429824322023-10-04T11:06:00.029-05:002023-10-04T11:06:00.143-05:00The Hospital Bag: A Must-Have for Any Health Scare<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkAbAFnuzKkZMA9S7TljFl6zFPZETNyszrlCahdqXZjD-6DHD8UyGRzgyjQFoG_vJIabZ4LxP32W_gx2eeuee8hiXxUlC-R80vpsCKxCys8KuodhLqgz7GNPugtYGAUjqOPSbBtR9UNnNFdDBIClPkAKVs8LzJv1n9HBKsx0t46uhljWvFXHiHpuxO/s902/BlueLuggage.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="677" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkAbAFnuzKkZMA9S7TljFl6zFPZETNyszrlCahdqXZjD-6DHD8UyGRzgyjQFoG_vJIabZ4LxP32W_gx2eeuee8hiXxUlC-R80vpsCKxCys8KuodhLqgz7GNPugtYGAUjqOPSbBtR9UNnNFdDBIClPkAKVs8LzJv1n9HBKsx0t46uhljWvFXHiHpuxO/s320/BlueLuggage.jpg" width="240" /></a></div><br /><p _msthash="20490" _msttexthash="70713188" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;"><br /></p><p _msthash="20490" _msttexthash="70713188" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;">Having a hospital bag prepared before a hospital stay is required can be a game changer in reducing stress during a health scare. I really wish I had thought about needing a more long-term stay when Dot was born and been better prepared for the unexpected, and I wasn't. Here are some things I've learned along the way so you can be better prepared than I was for a longer hospital stay. </p><p _msthash="20490" _msttexthash="17770766" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;"> Whether it's a planned surgery or an unexpected trip to the emergency room, being organized and having all the necessary items in one place can make a big difference in your peace of mind.</p><p _msthash="63986" _msttexthash="159779347" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">One of the main benefits of having a hospital bag ready to go is that it allows you to focus on your health rather than worrying about packing and gathering items at the last minute. If you're in a rush or feeling overwhelmed, it's easy to forget important items or to pack things that may not be necessary. By having a pre-made hospital bag, you can ensure that you have everything you need and that you won't have to worry about forgetting anything important. We call ours the 'Go Bag'. Something you can grab out of your closet or even keep in your car for when emergencies arise.</p><p _msthash="123085" _msttexthash="51710451" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">Another advantage of having a hospital bag is that it can help you feel more in control during a stressful and uncertain time. When you're facing a health scare, it's natural to feel anxious and out of control. Having a hospital bag can give you a sense of preparation and control, which can help you feel more calm and focused.</p><p _msthash="197783" _msttexthash="4303182" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">So what should you pack in your hospital bag? Here are some essential items to consider:</p><ol style="text-align: left;"><li><span _msthash="455468" _msttexthash="1275755" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Insurance information and identification</span></li><li><span _msthash="924768" _msttexthash="1105377" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">A list of your medications and allergies</span></li><li><span _msthash="1553656" _msttexthash="1473511" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">A copy of your advance directive (if you have one)</span></li><li><span _msthash="2342132" _msttexthash="745563" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Comfortable clothing and shoes</span></li><li><span _msthash="3290196" _msttexthash="2878915" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Personal hygiene items (toothbrush, toothpaste, soap, shampoo, etc.)</span></li><li><span _msthash="4397848" _msttexthash="2997384" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Any necessary medical equipment (such as a CPAP machine or insulin pump)</span></li><li><span _msthash="5665088" _msttexthash="2268487" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">A phone charger and any other electronic devices you may need</span></li><li><span _msthash="7091916" _msttexthash="1501461" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">A change of clothes for after your hospital stay</span></li><li><span _msthash="8678332" _msttexthash="1539226" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">Snacks and beverages (if allowed by the hospital)</span></li><li _msthidden="1"><span _msthash="11521939" _msttexthash="3643133" face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="background-color: #f7f7f8; color: #374151; font-size: 16px; white-space: pre-wrap;">A notepad and pen for taking notes or communicating with healthcare providers</span></li></ol><p _msthash="428350" _msttexthash="40268124" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;">It's also a good idea to have a designated person (such as a spouse or family member) who can help manage your hospital bag and ensure that it's ready to go in case of an emergency. This person can also help with any tasks or errands that need to be taken care of while you're in the hospital.</p><p _msthash="555724" _msttexthash="73886319" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Having a hospital bag prepared before a hospital stay is required can be a valuable tool in reducing stress and helping you feel more in control during a health scare. By packing all the necessary items in one place, you'll be better able to focus on your health and recovery, and you'll have one less thing to worry about. So, it is always better to be prepared before the emergency strikes.</p><p _msthash="555724" _msttexthash="73886319" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p _msthash="555724" _msttexthash="73886319" style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at <a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a>. </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-751248355655708412023-09-18T15:40:00.027-05:002023-09-18T15:40:00.144-05:00Tips for Traveling Comfortably with a Chronic Illness<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_yF-ZPB0yG1wkxumbhcX-VovKKFiQZxBp0x559_q8XALJpfJTFe2VwIpcdl21lFTGE-0TjLjHESgy7h5dsIxjInUch0uFR5rlIWzi7NRBFwhKkP9llCy8U9_LKmajsivPqJqXfsA_ciqnGE7zUevrO8z6td-sEXdm2HRBlLdKwo8ixNo19OqBK4yi/s902/LakeLimestoneCaboose.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="676" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_yF-ZPB0yG1wkxumbhcX-VovKKFiQZxBp0x559_q8XALJpfJTFe2VwIpcdl21lFTGE-0TjLjHESgy7h5dsIxjInUch0uFR5rlIWzi7NRBFwhKkP9llCy8U9_LKmajsivPqJqXfsA_ciqnGE7zUevrO8z6td-sEXdm2HRBlLdKwo8ixNo19OqBK4yi/s320/LakeLimestoneCaboose.jpg" width="240" /></a></div><br /><div><br /></div><div><br /></div><div><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;">Travelling can be a rewarding and enriching experience, but it can also be stressful, especially for those with chronic illness. I love planning little midweek or weekend getaways for our family. There's always a heavy focus on fun stuff to do with the kids that my partner and I were not privileged enough to experience ourselves growing up. However, with a little planning and preparation, it is possible to travel comfortably and safely as a person with a chronic illness. Here are some tips to help you have a successful and enjoyable trip:</p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Plan ahead: Make sure to plan your trip well in advance to allow for extra time for preparation and organization. This includes packing all necessary medications and medical supplies, and making sure to have copies of important documents such as your health insurance card and a list of your medications.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Communicate with your healthcare team: Before you leave, it is important to discuss your travel plans with your healthcare team. They can help you determine if it is safe for you to travel and provide any necessary recommendations or precautions to take.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Research your destination: Research your destination to find out about the availability of healthcare facilities and resources, as well as the local climate and any potential health risks. This will help you to be better prepared and know what to expect while you are away.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Pack smart: Pack wisely by bringing all necessary medications and medical supplies, as well as any comfort items that may help to ease any symptoms or discomfort. Make sure to pack extra supplies in case of any delays or unexpected events.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Take care of yourself: Remember to prioritize self-care while you are travelling. This may include taking breaks as needed, staying hydrated, and getting enough rest. It is also important to stay on top of your medications and follow any treatment plans as prescribed by your healthcare team.</p></li></ol><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">By following these tips, you can help to ensure that you have a comfortable and enjoyable trip while managing your chronic illness. Remember to always listen to your body and seek medical attention if needed, and don't be afraid to ask for help if you need it. With some careful planning and preparation, you can travel comfortably and confidently as a person with a chronic illness.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at <a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a>. </p></div>Unknownnoreply@blogger.com0Lake Limestone, Texas, USA31.3226386 -96.3175397999999923.0124047638211557 -131.4737898 59.632872436178843 -61.161289799999992tag:blogger.com,1999:blog-65763492405347873.post-63023268942370632402023-09-07T19:00:00.006-05:002023-09-07T19:00:00.174-05:00Why It's Important to Keep a Clear Head During a Crisis<p> </p><div style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGCVIwjB4IAEzs1dPnBd4I86fYJCarbt34whb7UyeNzgTjnV8LmQnPIGNe27lU8m1qnclDPBa9ud2mAim7tbjFwyZ1wSes0sds2MuG2uJzNhVfhTIkXg57A7ebhrFhjAZpNSp6o6kl7536Y6CWAKSS9rfY6EzYX97XHwwdFPc7w6UrOArFJDE2RFFr/s640/DotMomNICU.JPG"><img border="0" data-original-height="640" data-original-width="640" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGCVIwjB4IAEzs1dPnBd4I86fYJCarbt34whb7UyeNzgTjnV8LmQnPIGNe27lU8m1qnclDPBa9ud2mAim7tbjFwyZ1wSes0sds2MuG2uJzNhVfhTIkXg57A7ebhrFhjAZpNSp6o6kl7536Y6CWAKSS9rfY6EzYX97XHwwdFPc7w6UrOArFJDE2RFFr/s320/DotMomNICU.JPG" width="320" /></a></div><p><br /></p><p _msthash="20488" _msttexthash="38307919">Having a loved one with a chronic disease requires a whole new level of preparedness and awareness. It's important to remember that panicking during a health crisis can actually do more harm than good. Here are just a few of the benefits of not panicking during a health crisis:</p><p><br /></p><p _msthash="344033" _msttexthash="33195916">You can make better decisions: When we panic, our ability to think clearly and make rational decisions is impaired. By remaining calm and composed, we can better assess the situation and make informed decisions about how to protect ourselves and others.</p><p><br /></p><p _msthash="344034" _msttexthash="20235839">You can better cope with stress: Panic and anxiety only add to the stress of a health crisis. By staying calm, we can better handle the challenges that come our way and find ways to cope with the stress.</p><p><br /></p><p _msthash="344035" _msttexthash="25013365">You can be a positive influence on others: When we panic, we can inadvertently spread fear and panic to those around us. By remaining calm and composed, we can be a positive influence on others and help them stay calm as well.</p><p><br /></p><p _msthash="344036" _msttexthash="48222291">You can better access resources: During a health crisis, it's important to have access to accurate information and resources. Panic can cloud our judgment and make it harder to find the resources we need. By staying calm, we can more easily access the information and resources we need to stay healthy and safe.</p><p><br /></p><p _msthash="344037" _msttexthash="47640983">While it's natural to feel worried and anxious (I get it, I do a lot also) during a health crisis, it's important to remember the benefits of not panicking. By staying calm and composed, we can better handle the challenges that come our way and make informed decisions about how to protect ourselves and others.</p><p _msthash="344037" _msttexthash="47640983"><br /></p><p _msthash="344037" _msttexthash="47640983"><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-8499825922838252322023-08-23T15:33:00.019-05:002023-08-23T15:33:00.144-05:00Giving Your Medically Complex Child the Best Quality of Life<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipS9KKdHUlEVCcllAehzcLkAZNjijxjiSSbMAMhqt4AsWkGM_B1GCvR3Izc6IenzhsZO4vFD9tbJhnqqumtFvS9IycHcLPtyjCUYncgshBPU3bi7FFSikA7yXgFNOrycSLfrmj2eNLvamEfURYchXkuvyzu4p2YY1KZ_jfICcMPzMCdud_wxipjqRP/s902/DotBLPhotoshoot.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="677" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipS9KKdHUlEVCcllAehzcLkAZNjijxjiSSbMAMhqt4AsWkGM_B1GCvR3Izc6IenzhsZO4vFD9tbJhnqqumtFvS9IycHcLPtyjCUYncgshBPU3bi7FFSikA7yXgFNOrycSLfrmj2eNLvamEfURYchXkuvyzu4p2YY1KZ_jfICcMPzMCdud_wxipjqRP/s320/DotBLPhotoshoot.jpg" width="240" /></a></div><br /><p></p><p><br /></p><p>As a parent of a child with a complex medical condition, it can be challenging to navigate the various treatments and therapies that are necessary for their care. It can be easy to get caught up in the medical aspects of their condition and to forget about the importance of their overall quality of life. However, it is important to remember that giving your child the best quality of life possible is crucial for their physical and emotional well-being.</p><p><br /></p><p>Here are some tips for giving your medically complex child the best quality of life:</p><p><br /></p><p style="text-align: left;">1. Focus on their strengths and abilities: It is important to focus on your child's strengths and abilities, rather than their limitations. This can help them feel confident and capable, and can also help you as a parent to see the positive aspects of their condition.<br /><br />2. Encourage independence: Encourage your child to be as independent as possible, within their abilities. This can help them feel a sense of control and accomplishment, and can also help them build self-esteem.<br /><br />3. Find ways to incorporate their interests: Look for ways to incorporate your child's interests and hobbies into their daily routine. This can help them feel a sense of normalcy and can also provide a sense of joy and purpose.<br /><br />4. Seek support: It is important to have a strong support system in place. This could include family, friends, or support groups for individuals with your child's specific condition. Having people to lean on can help you navigate the ups and downs of caring for a child with a complex medical condition.<br /><br />5. Practice self-care: It is important to prioritize your own physical and mental health as a caregiver. This can help you have the energy and resilience needed to provide the best care for your child.<br /><br />6. Communicate with the medical team: Make sure to communicate with your child's medical team about their needs and preferences. This can help ensure that their care is tailored to their individual needs and can improve their overall quality of life.</p><p><br /></p><p>By following these tips and seeking support when needed, you can give your medically complex child the best quality of life possible. Remember, it is important to focus on their strengths and abilities and to find ways to incorporate their interests and hobbies into their daily routine.</p><p><br /></p><p><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-43178631746755556832023-08-08T15:18:00.039-05:002023-08-08T15:18:00.160-05:00The Power of Sharing Your Story<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkZ4Oz7mxZM6jVZCVxyJRfSVqullyljWctTrzH21ThJl-cRPnrmbAzr188Yarh3JElz4v2s9lRq07VYB_rRDu4p7WbC7XRQME-FSZF2SgwbrVRXmUMY35Ki4pH_1XXZXsBnGgb_w423PnJuLTERiKaDF8tPTK7cXBh3GgsySIbMmQU1unTm1SoQl3z/s902/DotHospital.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="677" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkZ4Oz7mxZM6jVZCVxyJRfSVqullyljWctTrzH21ThJl-cRPnrmbAzr188Yarh3JElz4v2s9lRq07VYB_rRDu4p7WbC7XRQME-FSZF2SgwbrVRXmUMY35Ki4pH_1XXZXsBnGgb_w423PnJuLTERiKaDF8tPTK7cXBh3GgsySIbMmQU1unTm1SoQl3z/s320/DotHospital.jpg" width="240" /></a></div><br /><p></p><p><span style="background-color: #f7f7f8; color: #374151; font-family: arial; font-size: 16px; white-space: pre-wrap;">Sharing your story can be a powerful way to connect with others and help those in need. When we open up about our experiences, we allow others to see that they are not alone in their struggles and that it is possible to overcome challenges and find hope. For me, it was important to keep friends and family updated on Dot's medical condition and journey. That turned into making friends and joining support groups where I not only could share my knowledge and experience with others, but have a place to seek advice and help also. </span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><span style="font-family: arial;">One of the main reasons it is important to share your story is that it can inspire and motivate others. By sharing your journey, you can show others that they too can overcome their own struggles and achieve their goals. Your story can provide a sense of hope and encouragement, which can be especially helpful for those who may be going through a difficult time.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><span style="font-family: arial;">Another reason to share your story is that it can raise awareness about important issues. By sharing your experiences, you can shed light on topics that may not be well-known or understood by others. This can help to create a dialogue and spark change on important issues that affect many people.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px; white-space: pre-wrap;"><span style="font-family: arial;">Sharing your story can also help to build a sense of community and support. When you share your experiences with others, you create a sense of connection and belonging. This can be especially valuable for those who may feel isolated or alone in their struggles. By sharing your story, you can create a sense of community and support for those who may need it most.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><span style="font-family: arial;">Sharing your unique story and outlook is such an important way to inspire, motivate, and support others. By opening up about your experiences, you can help others to see that they are not alone and that it is possible to overcome challenges and find hope. Whether you share your story through writing, speaking, or simply by being open and honest with those around you, your story has the power to make a difference in the lives of others. So, it is always important to share your story with others.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><span style="font-family: arial;"><br /></span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><span style="font-family: arial;"><span style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji";">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji";" target="_blank">Instagram</a><span style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji";">. </span></span></p>Unknownnoreply@blogger.com0Austin, TX, USA30.267153 -97.74306081.9569191638211549 -132.8993108 58.577386836178846 -62.586810799999995tag:blogger.com,1999:blog-65763492405347873.post-7091632629259828762023-07-25T12:04:00.017-05:002023-07-25T12:04:00.142-05:00Prioritizing Self-Care for Caregivers: Why It's Essential and How to Do It<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEieXLgItHgTxxaAaRjGBbgNw569B3bQcWBMgyQuRrXrfBo0Sp82oQ0vnkOax2iqbg4TJ8yutxaWaF6Ea95u153UDY-nMZlu9641vHGhV6HgzchFW0M7YqR3SOe0nBuikJW8bLUNE-vinxpuR6upZWfxm6P4c5kX6Llz7OqJ_MH_MprRZk-zyuJMCozD/s2000/D0BFC41D-DF7E-4B3F-96EA-C192C801D90B.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="2000" data-original-width="1125" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEieXLgItHgTxxaAaRjGBbgNw569B3bQcWBMgyQuRrXrfBo0Sp82oQ0vnkOax2iqbg4TJ8yutxaWaF6Ea95u153UDY-nMZlu9641vHGhV6HgzchFW0M7YqR3SOe0nBuikJW8bLUNE-vinxpuR6upZWfxm6P4c5kX6Llz7OqJ_MH_MprRZk-zyuJMCozD/s320/D0BFC41D-DF7E-4B3F-96EA-C192C801D90B.jpg" width="180" /></a></div><br /><p></p><p>As a caregiver and advocate for someone with a rare condition or disease, it can be easy to become consumed by the demands of caregiving and advocacy, often at the expense of our own physical and mental health. It is important to find balance in order to maintain our own well-being and be able to continue supporting our loved ones. This was a major lesson that took me a long time to learn. I can't possibly be all of the things to all of the people, and still keep my own health and sanity intact.</p><p><br /></p><p style="text-align: left;">One way to find balance is to make self-care a priority. This may involve setting aside time for activities that nourish our bodies and minds, such as exercising, practicing mindfulness, or engaging in hobbies. It can also involve seeking support from friends, family, or healthcare professionals when needed.<br /><br />It is important to remember that self-care is not selfish. In fact, taking care of ourselves enables us to better care for others. It is okay to ask for help or to take a break when needed. It is also important to have realistic expectations and not to try to do everything on our own.<br /><br />Another way to find balance is to set boundaries. This may involve setting limits on the time and energy we devote to caregiving and advocacy, or establishing clear communication with our loved ones about what we are and are not able to do. It is important to be honest with ourselves and others about what we can handle and to seek help when needed.<br /><br />It is also helpful to find ways to manage stress and to seek out sources of support, such as support groups or therapy. Caregiving and advocacy can be rewarding, but it can also be challenging. It is important to find ways to cope with the demands of caregiving and to take care of ourselves in the process.</p><p>Finding balance between physical health and mental health as a caregiver and advocate is essential for maintaining our own well-being and being able to continue supporting our loved ones. This may involve making self-care a priority, setting boundaries, and finding ways to manage stress and seek out support. By taking care of ourselves, we are better able to care for others.</p><p><br /></p><p><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-12512599773092461152023-07-12T14:28:00.029-05:002023-07-12T14:28:00.143-05:00The Importance of Building a Community in Rare Disease Advocacy<p> </p><p><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); font-size: 16px; text-size-adjust: 100%; white-space: pre-wrap;"><br /></span></p><p></p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkTjDzPiZHuEUJDDj8DftjfpPE7utnGfE0SDTVtCRAmh1x3pYM-TBwQRAaRb6GLnDyDWF9ptD00g2VPXrb199SGZSr9AXnReyy0DiMFpRaVeKwXRJdpWzGW4v2k0MoENbzeIKKTUg884TlDO1KbvtJW0XiCurESAw0cJXN4iRPP_kGuokbTOET4AVq/s902/MomDotHospital.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="678" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkTjDzPiZHuEUJDDj8DftjfpPE7utnGfE0SDTVtCRAmh1x3pYM-TBwQRAaRb6GLnDyDWF9ptD00g2VPXrb199SGZSr9AXnReyy0DiMFpRaVeKwXRJdpWzGW4v2k0MoENbzeIKKTUg884TlDO1KbvtJW0XiCurESAw0cJXN4iRPP_kGuokbTOET4AVq/s320/MomDotHospital.jpg" width="241" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); font-size: 16px; text-size-adjust: 100%; white-space: pre-wrap;">I remember the long days that Dot and I spent in the NICU together. Her fighting every moment for her life and to live, and me being there by her side every step of the way doing whatever the next best thing for her medical journey was. <br /></span><p></p><p><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); font-size: 16px; text-size-adjust: 100%; white-space: pre-wrap;">Dealing with a rare disease can be a isolating and overwhelming experience. It's not uncommon for patients and their loved ones to feel like they are the only ones facing the challenges that come with a rare disease. However, seeking out a community of others who are also affected by the same condition can provide much-needed support, resources, and a sense of belonging.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">One of the benefits of being part of a community is having access to a wealth of knowledge and experience. Many rare diseases are not well understood, and it can be difficult to find reliable information about treatment options and managing the condition. By joining a community of others with the same rare disease, you can learn from those who have been living with the condition for longer and have developed strategies for managing it.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">In addition to sharing information and providing support, being part of a community can also help you feel less alone. It can be incredibly isolating to deal with a rare disease, especially if you don't know anyone else who is going through the same thing. Connecting with others who understand what you're going through can be incredibly comforting and can help you feel less isolated.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">Another important aspect of being part of a community is the opportunity to advocate for change. Rare diseases often receive less attention and funding than more common conditions, and patients and their loved ones can sometimes feel like they are fighting an uphill battle to get the support they need. By coming together as a community, you can have a stronger voice and be better equipped to advocate for the resources and support you need.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;">Seeking out a community when dealing with a rare disease can provide valuable resources, support, and a sense of belonging. It can also give you the opportunity to advocate for change and make a difference for others with the same condition. If you're dealing with a rare disease, consider reaching out to organizations and support groups that can connect you with others who understand what you're going through.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;"><span style="background-color: #f7f7f8; color: #374151;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a><span style="background-color: #f7f7f8; color: #374151;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-58695298857360224372023-06-28T13:43:00.019-05:002023-06-28T13:43:00.143-05:00The Journey of a Rare Disease: Finding the Silver Lining and Thriving<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiBZ_gcFmPf5DWt5PBYNxi5ZekprJfPOv0bJ_bPbfTLKM7MWgog87KEjXqbdg9E34D-7AM-iWziSaW9G7nsjU5tf4ycuarCnFaZuhODZnquX_YB8GbT3D2lPmz9fjIKJjXYK8jk_SJunWIssanK9ygXhQM9NyK_wjx8vxq5m2RJlbP9PtdwwnT9kEx/s902/DotAmbulance.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="676" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiBZ_gcFmPf5DWt5PBYNxi5ZekprJfPOv0bJ_bPbfTLKM7MWgog87KEjXqbdg9E34D-7AM-iWziSaW9G7nsjU5tf4ycuarCnFaZuhODZnquX_YB8GbT3D2lPmz9fjIKJjXYK8jk_SJunWIssanK9ygXhQM9NyK_wjx8vxq5m2RJlbP9PtdwwnT9kEx/s320/DotAmbulance.jpg" width="240" /></a></div><p><br /></p><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="caret-color: rgb(209, 213, 219); font-size: 16px; white-space: pre-wrap;">Life with a rare disease can be so hard and complicated. You will undoubtedly deal with bad days on and off. The good thing about that, is that to some extent, we all do. It's important to have the healthiest mindset you possibly can to make it through the difficult times that will happen to us all in one way, shape or form. </span><p><span face="Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"" style="-webkit-text-size-adjust: 100%; caret-color: rgb(209, 213, 219); font-size: 16px; text-size-adjust: 100%; white-space: pre-wrap;">When facing a rare disease, it can be easy to focus on the challenges and hardships that come with it. It can be overwhelming to navigate the unfamiliar medical landscape, manage complex treatment plans, and cope with the physical and emotional toll of the disease.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">However, in the midst of all of this, it's important to try to find the silver lining and look for the positives in life. This can be a tough task, but it's crucial for maintaining a healthy outlook and finding ways to thrive despite the challenges.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">One way to find the silver lining is to focus on the support and love of those around you. A rare disease can bring people together in unexpected ways, and you may find that you have a stronger network of friends and family than you ever realized. Lean on these people for emotional support and practical help, and take comfort in the fact that you are not alone in your journey.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">Another way to find the silver lining is to embrace the opportunity to learn and grow. A rare disease can be a chance to become an expert on your own health and advocate for yourself and others with the same condition. It can also be a chance to develop new skills, such as communicating with medical professionals, managing finances, and coordinating care. These skills can serve you well not only in managing your disease, but also in other areas of your life.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px; text-size-adjust: 100%; white-space: pre-wrap;">Finally, try to find joy and purpose in the present moment. It can be easy to get caught up in worry about the future, but it's important to remember that life is a journey and to appreciate the small moments of happiness and accomplishment along the way. This might mean finding ways to enjoy hobbies and activities that bring you joy, setting achievable goals and celebrating your progress, or finding ways to give back to others in need.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;">In summary, while a rare disease can be a difficult and uncertain journey, it's important to try to find the silver lining and look for the positives in life. This might mean focusing on the support of loved ones, embracing the opportunity to learn and grow, or finding joy and purpose in the present moment. By looking for the silver lining, you can find ways to thrive despite the challenges and live a fulfilling and meani<span>ngful life.</span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;"><span><br /></span></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; -webkit-text-size-adjust: 100%; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; caret-color: rgb(209, 213, 219); font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; text-size-adjust: 100%; white-space: pre-wrap;"><span><span style="background-color: #f7f7f8; color: #374151;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a><span style="background-color: #f7f7f8; color: #374151;">. </span></span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-37524698925662964142023-06-07T20:03:00.015-05:002023-06-07T20:03:00.148-05:00Navigating the Healthcare System as a Caregiver: How to Effectively Advocate for Your Loved One<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoJUdFdKI1L8dvIYoLQO2-3mFL1-xHLC8YKQtDp_QYwkk90S3jIgqazt8LyNtCP2OsYlyj5JsmqlgNQJ38SCsl3sK2Rff0QLY68ACCwuQio8uayNH4xHeoHx_pj4b0ffaEbI63OFSAOHKyfD0JHjyN1m7v5Q-07yVR5GF42svFC6ZXNo1svdxUDm42/s4032/IMG_7099.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoJUdFdKI1L8dvIYoLQO2-3mFL1-xHLC8YKQtDp_QYwkk90S3jIgqazt8LyNtCP2OsYlyj5JsmqlgNQJ38SCsl3sK2Rff0QLY68ACCwuQio8uayNH4xHeoHx_pj4b0ffaEbI63OFSAOHKyfD0JHjyN1m7v5Q-07yVR5GF42svFC6ZXNo1svdxUDm42/s320/IMG_7099.HEIC" width="240" /></a></div><br /><p></p><p><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;">As a caregiver or advocate for a loved one with a chronic or life-threatening illness, it can be overwhelming to navigate the healthcare system and ensure that your loved one receives the best care possible. Here are some tips to help you advocate effectively:</p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Know your loved one's medical history and treatment plan: It's important to have a thorough understanding of your loved one's medical history and current treatment plan. This includes knowing their diagnoses, medications, and any allergies or sensitivities. This information will be crucial when interacting with healthcare providers and making decisions about care.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Communicate openly and honestly with healthcare providers: It's important to be clear and concise when communicating with healthcare providers about your loved one's needs and concerns. Don't be afraid to ask questions or express your concerns. It's also a good idea to bring a list of questions or concerns to appointments to ensure that everything is addressed.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Be proactive: Don't wait for problems to arise before addressing them. If you have concerns about your loved one's care or treatment, don't be afraid to bring them up with their healthcare team. It's better to address issues early on than to wait until they become more serious.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Seek support: Being an advocate for a loved one with a chronic or life-threatening illness can be emotionally and physically draining. It's important to have a support system of friends, family, and/or other caregivers to lean on for emotional and practical support. Consider joining a support group or seeking the assistance of a professional advocate or healthcare navigator.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Take care of yourself: It's important to prioritize your own physical and mental health as an advocate for a loved one. Make sure to carve out time for self-care and seek support when needed. Remember, you can't effectively advocate for your loved one if you aren't taking care of yourself.</p></li></ol><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Advocating for a loved one with a chronic or life-threatening illness can be challenging, but by being well-informed, proactive, and seeking support, you can be an effective advocate and help ensure that your loved one receives the best care possible.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at <a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a>. </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-731420433594496462023-05-31T12:56:00.008-05:002023-05-31T12:56:00.144-05:00Be Prepared: The Essentials to Bring for a Hospital Stay<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyWCHgAPacS-9h23AvAqLlBFQjBa8rEyrjW5GWDeUlIq22fr5Gpnn_Zgbq7kH80Ed8He0nHTWPp6wNIdGqdf0sPjEgU9S1zhJglUAbEZaBvA1n0ktIXC4tP30JAJF1Ys1ItTPac_U1gmPoi1VIv8-o7JckH8-toMNia0glL46A37DOLfLUYrvOxnpp/s640/IMG_3732.JPG" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="640" data-original-width="640" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyWCHgAPacS-9h23AvAqLlBFQjBa8rEyrjW5GWDeUlIq22fr5Gpnn_Zgbq7kH80Ed8He0nHTWPp6wNIdGqdf0sPjEgU9S1zhJglUAbEZaBvA1n0ktIXC4tP30JAJF1Ys1ItTPac_U1gmPoi1VIv8-o7JckH8-toMNia0glL46A37DOLfLUYrvOxnpp/s320/IMG_3732.JPG" width="320" /></a></div><br /><p><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;">Going to the hospital can be a stressful and overwhelming experience, but being prepared can help make your stay more comfortable. Here are five items to consider bringing with you:</p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Personal identification and insurance information: Make sure to bring your driver's license or other form of identification, as well as your insurance card. You'll also want to bring a list of any medications you're currently taking and the dosages.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Comfort items: Hospital rooms can be cold and sterile, so bring a few items to make your stay more comfortable. This could include a blanket, pillows, or a favorite book or magazine. You may also want to bring earplugs or a white noise machine to help you sleep.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Entertainment: A hospital stay can be boring, so bring some items to pass the time. This could include a tablet or laptop with movies and TV shows, books, puzzles, or other games.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Toiletries: Hospitals often provide basic toiletries, but you may want to bring your own items to ensure you have everything you need. This could include a toothbrush, toothpaste, shampoo, and other personal grooming items.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Snacks: Hospital food can be unappealing or unavailable at times, so it's a good idea to bring some snacks of your own. This could include granola bars, nuts, or other non-perishable items. Just be sure to check with the hospital or your healthcare provider to make sure the snacks you bring are allowed.</p></li></ol><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Remember, it's always a good idea to check with your healthcare provider or the hospital before your stay to see if there are any specific items they recommend bringing.</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at <a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a>. </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-26786560254108853592023-05-10T12:36:00.019-05:002023-05-10T12:36:00.148-05:00Caring for the Caregiver: How to Manage Stress and Maintain Your Own Well-Being<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0FkBXY-GGaOBsiRc-DyVopqVeZM8DHt3ENKCjP17hZVpEjnD7N1xajYdrb449_sRYYPtdubV-vwZbCb-qtSSmTDAO-TaEjeXQGmeCun4LpB7utJnFnFmUmBcTULiDjG7_Ge9Z7auWnUXwpD_zQJESZxWj4lf4gyEJUvjDLm-nNaj1qz8ATur1LAEQ/s4032/IMG_7238.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0FkBXY-GGaOBsiRc-DyVopqVeZM8DHt3ENKCjP17hZVpEjnD7N1xajYdrb449_sRYYPtdubV-vwZbCb-qtSSmTDAO-TaEjeXQGmeCun4LpB7utJnFnFmUmBcTULiDjG7_Ge9Z7auWnUXwpD_zQJESZxWj4lf4gyEJUvjDLm-nNaj1qz8ATur1LAEQ/s320/IMG_7238.HEIC" width="240" /></a></div><p></p><p><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 0px 0px 1.25em; white-space: pre-wrap;">As a caregiver, it's important to find ways to manage stress in order to maintain your own physical and mental health. Here are five strategies that may help:</p><ol style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; counter-reset: item 0; display: flex; flex-direction: column; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; list-style-image: initial; list-style-position: initial; margin: 1.25em 0px; padding: 0px 0px 0px 1rem; white-space: pre-wrap;"><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Take breaks: It's important to give yourself breaks from caregiving duties to rest and recharge. This could mean hiring a respite caregiver to take over for a few hours or days, or simply taking time for yourself to do something you enjoy.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Get support: Caregiving can be a demanding and isolating role. It's important to have a support system of friends, family, and/or other caregivers to lean on for emotional and practical support. Consider joining a caregiver support group to connect with others in similar situations. Facebook has been an invaluable tool for this specific need. </p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Practice self-care: Make sure to prioritize your own physical and mental health by engaging in activities that nourish and restore you. This could include exercise, hobbies, or simply taking time to relax and unwind.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Manage time effectively: Caregiving responsibilities can be overwhelming, but careful time management can help. Make a schedule or to-do list to stay organized and prioritize tasks. Don't be afraid to delegate tasks to others if possible.</p></li><li style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px; padding-left: 0.375em;"><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; margin: 0px;">Seek professional help: If stress becomes overwhelming or you are struggling to cope, it may be helpful to seek the support of a mental health professional. A therapist or counselor can provide tools and strategies to help you manage stress and improve your overall well-being.</p></li></ol><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Remember, it's okay to ask for help and take care of yourself as a caregiver. You deserve it!</p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;"><br /></p><p style="--tw-border-spacing-x: 0; --tw-border-spacing-y: 0; --tw-ring-color: rgba(59,130,246,0.5); --tw-ring-offset-color: #fff; --tw-ring-offset-shadow: 0 0 transparent; --tw-ring-offset-width: 0px; --tw-ring-shadow: 0 0 transparent; --tw-rotate: 0; --tw-scale-x: 1; --tw-scale-y: 1; --tw-scroll-snap-strictness: proximity; --tw-shadow-colored: 0 0 transparent; --tw-shadow: 0 0 transparent; --tw-skew-x: 0; --tw-skew-y: 0; --tw-translate-x: 0; --tw-translate-y: 0; background-color: #f7f7f8; border: 0px solid rgb(217, 217, 227); box-sizing: border-box; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; margin: 1.25em 0px 0px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at <a href="https://www.instagram.com/aprilintheburbs/" target="_blank">Instagram</a>. </p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-72359153663653875462023-04-26T15:21:00.022-05:002023-04-26T15:21:00.146-05:00Thriving with a Rare Disease<p><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody><tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi31xjxqS-MTn6hHSGhXdflNOXoKiy_6aAUfz2dfrdHZAPBVDhc_rOSjhgZHez4-ulnC31DnNS-u2yuyb7AK8ia23zeHU44aFvlqu_9oNsx7Ux4wlJr_v6t_CWLTshPPe5ye5qnyblGiCjuqJf9f-W_KYRBH48BFqkUHkJUTPJsdki0qyNZWg8zsXbV/s1203/DotNameCard.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="902" data-original-width="1203" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi31xjxqS-MTn6hHSGhXdflNOXoKiy_6aAUfz2dfrdHZAPBVDhc_rOSjhgZHez4-ulnC31DnNS-u2yuyb7AK8ia23zeHU44aFvlqu_9oNsx7Ux4wlJr_v6t_CWLTshPPe5ye5qnyblGiCjuqJf9f-W_KYRBH48BFqkUHkJUTPJsdki0qyNZWg8zsXbV/s320/DotNameCard.jpg" width="320" /></a></td></tr><tr><td class="tr-caption" style="text-align: center;">Dot using her Bob Books word cards to spell her name.<br /><br /></td></tr></tbody></table><br /></p><p>Living with a chronic illness or rare disease can be challenging and can often feel like a burden. Dot personally tells me that she doesn't like that she has to take growth hormone shots six days a week, and her brother doesn't. We have lots of talks about how everyone has their own thigs they have to deal with, and this is her thing. I can be as supportive as possible, but this is part of her life and will be so it's important to accept and understand that. It can be easy to get caught up in the negative aspects of the condition and to let it consume your life. However, it is important to remember that it is still possible to live a full and meaningful life, despite the challenges that may come with a chronic illness or rare disease.</p><p><br /></p><p>Here are some tips for living life to the fullest while dealing with a chronic illness or rare disease:</p><p><br /></p><p>Set goals and work towards them: Having goals and working towards them can give you a sense of purpose and help you feel more in control of your life. These goals can be big or small, and can be related to your condition or something completely unrelated.</p><p><br /></p><p>Find ways to manage your condition: Proper management of your condition is key to being able to live a full and active life. This may include following a specific treatment plan, making lifestyle changes, or finding ways to cope with any symptoms you may experience.</p><p><br /></p><p>Seek support: It is important to have a strong support system in place. This could include family, friends, or support groups for individuals with your specific condition. Having people to lean on can help you navigate the ups and downs of living with a chronic illness or rare disease.</p><p><br /></p><p>Practice self-care: Taking care of yourself is crucial when living with a chronic illness or rare disease. This could include things like getting enough rest, eating a healthy diet, and finding ways to relax and reduce stress.</p><p><br /></p><p>Find joy and purpose: It is important to find activities that bring you joy and a sense of purpose. This could be a hobby, a creative outlet, or volunteering. Engaging in activities that bring you happiness can help you stay positive and motivated.</p><p><br /></p><p>Don't be afraid to ask for help: It is okay to ask for help when you need it. Whether it be with managing your condition or with everyday tasks, it is important to not try to do everything on your own.</p><p><br /></p><p>By following these tips and seeking support when needed, you can live a full and meaningful life despite the challenges that come with a chronic illness or rare disease. Remember, it is important to focus on the things that bring you joy and purpose and to not let your condition define you.</p><p><br /></p><p><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-42249599126332314822023-04-04T11:05:00.015-05:002023-04-04T11:05:00.183-05:00The Top 10 Reasons Why Self Care is Important for Parents and Caregivers of People with Rare Disease<p> </p><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEincj6tePNI9HcCuj7AzSSH9k8N-q1H7NWHXzXZDvbHmbklaqIaw9ntorm6Ssvv6O2Y5HBhTk01suFW44SNr6ZaSDVSwtFDyC4gnxH8ngbPpASrJmqQf7yPLvpvlWBPV2PKJiI1rz_z8lljSPuFvrJVLbI0zt4HM1sBP_gEDs9f6LAC9-sepsrGZIKZ/s4032/IMG_4658.HEIC" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="4032" data-original-width="3024" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEincj6tePNI9HcCuj7AzSSH9k8N-q1H7NWHXzXZDvbHmbklaqIaw9ntorm6Ssvv6O2Y5HBhTk01suFW44SNr6ZaSDVSwtFDyC4gnxH8ngbPpASrJmqQf7yPLvpvlWBPV2PKJiI1rz_z8lljSPuFvrJVLbI0zt4HM1sBP_gEDs9f6LAC9-sepsrGZIKZ/s320/IMG_4658.HEIC" width="240" /></a></div><div class="separator" style="clear: both; text-align: center;"><br /></div><p></p><p>As a parent or caregiver to someone with a rare disease, it is important to prioritize your own self care. Taking care of yourself can help you better care for your loved one and ensure that you have the energy and resources to meet their needs. Here are the top 10 reasons why self care is important when being a parent or caregiver to someone with a rare disease:</p><p><br /></p><p>1. To reduce stress: Caring for someone with a rare disease can be stressful, and it is important to find ways to manage that stress. Self care activities, such as exercise, meditation, or hobbies, can help you relax and recharge.</p><p><br /></p><p>2. To improve your physical health: Taking care of yourself can help you maintain your physical health and well-being. Eating well, getting enough sleep, and exercising regularly can help you stay healthy and better able to care for your loved one.</p><p><br /></p><p>3. To improve your mental health: Self care can also help improve your mental health by providing an outlet for your emotions and helping you cope with the challenges of caring for someone with a rare disease.</p><p><br /></p><p>4. To prevent burnout: Caring for someone with a rare disease can be emotionally and physically draining. Prioritizing self care can help prevent burnout and ensure that you have the energy and resources to continue caring for your loved one.</p><p><br /></p><p>5. To set a good example: As a parent or caregiver, you are a role model for your loved one. By taking care of yourself, you can show them the importance of self care and set a good example for them to follow.</p><p><br /></p><p>6. To maintain your own identity: It is easy to become consumed by the role of caregiver and lose sight of your own interests and goals. Self care can help you maintain your own identity and pursue your own passions and interests.</p><p><br /></p><p>7. To improve your relationships: Caring for someone with a rare disease can put a strain on your relationships with others. Self care can help you maintain and improve your relationships by ensuring that you have the time and energy to invest in them.</p><p><br /></p><p>8. To better manage your time: Self care can help you better manage your time by giving you the opportunity to prioritize your own needs and interests. This can help you feel more balanced and in control of your life.</p><p><br /></p><p>9. To improve your decision-making skills: Taking care of yourself can help improve your decision-making skills by ensuring that you have the energy and clarity of mind to make sound choices.</p><p><br /></p><p>10. To improve your overall well-being: Self care is an essential component of overall well-being. By prioritizing self care, you can improve your physical and mental health, reduce stress, and feel more balanced and fulfilled.</p><p><br /></p><p>Self care is an essential part of being a parent or caregiver to someone with a rare disease. By prioritizing your own self care, you can reduce stress, improve your physical and mental health, and better manage your time and relationships. By taking care of yourself, you can be a more effective caregiver and set a good example for your loved one to follow.</p><p><br /></p><p><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="background-color: #f7f7f8; color: #374151; font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-65763492405347873.post-68318850389197182732023-03-21T15:11:00.019-05:002023-03-21T15:11:00.225-05:00Caretaker Burnout: How to Avoid It<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3a7aM_1jwXVHm7dbyMHFy99k8b7xa7MRNhAz2rp2twnQY4VLsfWKvAGi4b-haJwNA1Ilkyag1fDNQNNTwpAiay5kH3_1hMus5Vkiv_j-amJfLdrxtomDEfBb_7yT8BC7ZUhGJ7tkoGIbyr2I1o_iE22h2uZpSC5ZzJtVLWroASRi1kAwAL5vwfJkU/s902/DotandMomDriveway.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="902" data-original-width="722" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3a7aM_1jwXVHm7dbyMHFy99k8b7xa7MRNhAz2rp2twnQY4VLsfWKvAGi4b-haJwNA1Ilkyag1fDNQNNTwpAiay5kH3_1hMus5Vkiv_j-amJfLdrxtomDEfBb_7yT8BC7ZUhGJ7tkoGIbyr2I1o_iE22h2uZpSC5ZzJtVLWroASRi1kAwAL5vwfJkU/s320/DotandMomDriveway.JPG" width="256" /></a></div><br /><p><br /></p><p>I was definitely on the verge of caretaker burnout when Dot was newly home from the hospital. If you're so burnt-out that you're not even taking anywhere near proper care of yourself, it's time to try a new way. </p><p>Caretaker burnout is a common and serious issue faced by individuals who are responsible for the care of others, whether it be for a family member, a friend, or a client. It is important to address caretaker burnout as it can have serious consequences on both the physical and mental health of the caretaker as well as the quality of care they are able to provide.</p><p><br /></p><p>Here are some tips for avoiding caretaker burnout:</p><p><br /></p><p>Take breaks: It is important to take breaks from caregiving duties to allow yourself time to rest and recharge. This could be as simple as taking a few minutes to sit down and relax or taking a day off to do something enjoyable.</p><p><br /></p><p>Seek support: Don't try to do everything on your own. It is important to have a support system in place, whether it be friends, family, or professional support. This can help alleviate some of the stress and burden of caregiving.</p><p><br /></p><p>Practice self-care: Make sure to prioritize your own physical and mental health. This could include exercising, eating well, getting enough sleep, and engaging in activities that bring you joy and relaxation.</p><p><br /></p><p>Set boundaries: It is important to set boundaries and communicate your needs and limitations to those you are caring for and to others in your support system. This can help ensure that you are able to manage your workload and responsibilities effectively.</p><p><br /></p><p>Seek respite care: If possible, consider seeking respite care to provide you with a break from caregiving duties. This could be in the form of professional in-home care or a stay at a respite care facility.</p><p><br /></p><p>Take care of your own physical and mental health: Make sure to prioritize your own physical and mental health. This could include exercising, eating well, getting enough sleep, and engaging in activities that bring you joy and relaxation.</p><p><br /></p><p>Seek professional help: If you are feeling overwhelmed and unable to manage your caregiving responsibilities, it is important to seek professional help. This could include talking to a therapist or joining a support group for caregivers.</p><p><br /></p><p>By following these tips and seeking support when needed, you can help prevent caretaker burnout and ensure that you are able to continue providing the best possible care to those in your care.</p><p><br /></p><p><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">Want to know more about advocating for your child or dealing with a rare disease? Follow along over at </span><a href="https://www.instagram.com/aprilintheburbs/" style="font-family: Söhne, ui-sans-serif, system-ui, -apple-system, "Segoe UI", Roboto, Ubuntu, Cantarell, "Noto Sans", sans-serif, "Helvetica Neue", Arial, "Apple Color Emoji", "Segoe UI Emoji", "Segoe UI Symbol", "Noto Color Emoji"; font-size: 16px; white-space: pre-wrap;" target="_blank">Instagram</a><span style="color: #374151; font-family: "Times New Roman"; font-size: 16px; white-space: pre-wrap;">. </span></p>Unknownnoreply@blogger.com0